Sorry that I am just now getting around to updating from Keely's recent doctor's visits. First of all, she is completely over the RSV and doing well. The pulmonologist says that Keely looks really good to her and her lungs sounded clear. Also, we have a consult with the Pediatric Surgeon so that we can get her Broviac taken out. The reason being, is that "Miss Priss" is starting to pull on things now and I am terrified that she is going to pull that thing out and bleed to death. She has already come close in the middle of the night when she decides that she wants to wake up and play. .Something just told me to get up and look at her. So thankful that I went with my instinct. Anyways, the most exciting news that we got was that Keely's heart function has returned completely to normal and the pulmonary pressures are normal. This is the first time since birth that they have been normal. The Cardiologist says that this is a miracle and I honestly believe that God is showing favoritism to her. I thank him everyday for that. We are in the process of trying something new with Keely. She has not had anything in her stomach besides the one medicine that she gets via the g-tube in 12 months. We are trying to bolus feed her so that we can get a g-tube button and not have the dangling tube that she has now. Since she is j-tube fed which means fed in the intestines, we will have to be completely sure that she is tolerating this before we make the switch. So, it is my guess that it will be a while before we make the switch. Anyways, this is all the news I have for now. Please continue to pray for her that she stays healthy and event free. Love you guys!!!

Hello all!!! Just this past week, Keely tested positive for RSV. This is the first sickness she has had other than her complicated medical problems that seem to be narrowing down.(Knock on Wood) Anyways, on the bright side, she has not been acting sick at all. She has had a little cough with some congestion but that is about it. Thank goodness!!! Tomorrow, we will go to Charleston for follow-up appointments with the Pulmonologist and Cardiologist. Hope that everything turns out for the good.
On a much sadder note, I lost my Grandmother Thursday night. She has been battling Breast Cancer since March. I am surely going to miss her but I am really thankful that she is not suffering any longer.
Brandon on the otherhand had a repeat bone marrow biopsy last week and he got the results back. Everything was normal. I am just glad that God has blessed us this far. I want to thank everyone again for the continued thoughts and prayers. They surely seem to be working. Love you guys!!!

Can't believe my baby is 18 months!!!

Its been a while since the last update and I apologize. Things have been a little busy lately. I had my wisdom teeth cut out on August 31st and as of today, I am still feeling cruddy. I have had a rough time. Anyways, on September 2nd, Keely turned 18 months old. We went for her well-visit with Dr. Bonnett on the 3rd and things went well. She weighed 25lbs6oz. She is now in the 75th percentile for her weight and the 15th percentile for her length and her circumference. Things are moving along rather nicely. Thank Goodness!!! We pray that things stay good. On another note, my grandmother was admitted to the hospital last week and is now at home under the care of hospice. Come to find out, the cancer has spread to the other breast and also to her liver. The oncologist told us that it is so fast progressing that they expect her to make it 1 to 2 months at the most. So, right now, we are trying to spend as much time as we can with her. Please continue to pray that she does not suffer. As far as Brandon, he is doing good. He has to go Tuesday for another bone marrow biopsy because his white count keeps fluctuating. Dr. Madden says that he is not expecting anything suspicious but it is better to be safe than sorry. I agree with him. I will post when we get the results back. We hope that everyone has a GREAT Labor Day!!!! Be safe and have fun!!!!