Monday was a long, but exciting day for us as we departed at 5:30 am to take Keely for her 6 week check-up at the Pulmonary Clinic. The doctor says that Keely is doing GREAT and they want to wean her off the ventilator by an hour a day so that Keely is only on at bedtime. Currently she is off the ventilator 8 hours a day. Another exciting piece of info.....Keely can start learning to eat again after not being able to have anything for 11 months. It is going to be a challenge but with faith....she will get there. We have a GREAT group of speech therapist that are working with her. Also, she has gained some weight since her last weight check 2 weeks ago. She is now at 24lbs and 3oz. She is getting to be a "Chunky Monkey". As I look back on the past year, Keely has came a long way. All the healthcare providers cannot believe how far she has came. It was thought that she would never make it this far. All I can say is that I have a little fighter and a strong-willed little girl on my hands. Thanks to God and all the thoughts and prayers from friends and family. Without ya'll....We could not have gotten through ALL this. It has been 3 months since Keely's last hospitalization. Time sure does fly when things are going well.
About Me
- Keely's Mom
- Keely is a little girl who was born on March 2, 2008 and has a chromosome 3 abnormality. As of right now, she is the only child in the world with the mutation she has. She has had numerous hospitalizations and medical problems since birth. In fact, many of which they did not know if she would make it through. She has currently went through 6 different surgeries in her short life. I am here just to tell her story or maybe even find some other people who can relate to our story.
Fantastic News! I am loving that your blogging about Keeley now and I can keep up with you guys this way. Are you still needing to know anything about the sites I showed you while I was at your house? let me know and I'll be glad to walk you through it. If anything when K goes to bed we can chat on the phone as I go through it at the same time if that makes it easier. :) LOVE your new header picture (tooting my own horn)!
ReplyDeleteWOW! It's been 3 months huh? It has went by fast and I'm so glad to hear she is doing so well. You guys are some amazing people and loved by thousands that's for sure. Have a great day today and hope to see you soon!