Keely got home from MUSC on May 26th and at the moment she is doing GREAT. She had a follow-up appointment last Monday and the doctors say that everything still looks good with the pulmonary hypertension and her heart is functioning normally. She is still on trach collar for 8 hours a day only and the rest of the day she has to be on the ventilator. The doctors say that this is temporary until her lungs can grow and get healthier. Please pray that she continues to do well and that we stay away from the hospital. Also, an update on Brandon...for those that don't know, Keely's daddy has Leukemia and he just had another bone marrow biopsy and the oncologist say that he is in remission at this time. We are truly blessed to not only have Keely but that Brandon is doing as well as he is.
About Me
- Keely's Mom
- Keely is a little girl who was born on March 2, 2008 and has a chromosome 3 abnormality. As of right now, she is the only child in the world with the mutation she has. She has had numerous hospitalizations and medical problems since birth. In fact, many of which they did not know if she would make it through. She has currently went through 6 different surgeries in her short life. I am here just to tell her story or maybe even find some other people who can relate to our story.
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